Families & Friends of the Epilepsy Society (FFES)

Helping people see a brighter side of life

We're a small charity set up by families of people supported by the Epilepsy Society. Our aim is simple: to improve the life of the people who live there, and for the staff who support them.

Join Us
Donate - via JustGiving
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A part of the community

Our son has lived here for over a decade, but it’s only since we joined FFES 18 months ago that we’ve really felt part of the community.

Kind Words from our friends

People gathered outdoors sitting under white tents and on chairs in a garden with green trees and flowers.
Group of adults enjoying a swimming pool session with pool noodles and a ball, indoors.
Musicians playing marimba and drums under a tent at an outdoor event with seated audience.
Next Event

Sunday Sounds Disco Special

Sunday
6/9/26
2-4pm
Rec Hall

Who We Are

The Families & Friends of the Epilepsy Society (FFES) has been part of life at the Epilepsy Society for over 25 years.

Today the society is home to 110 people with residential care or supported living.

Typically, these are adults with very hard to treat epilepsy, and some level of learning disability. They are funded by local authorities and the NHS, depending on their level of medical need.

Our charity aims to add to the service provided by the Epilepsy Society. We're volunteer led and every trustee is the relative of someone supported by the Epilepsy Society and nobody is paid.

All the money we raise goes towards fulfilling our charitable purpose.

Learn More
Circular emblem with gradient orange to pink background and white letters 'ffes.'

Kind words from our friends

Creating community at the Epilepsy Society

Time and again, members tell us the same thing: it helps to be around people who just get it.

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It's the fellowship that I love

Speaking with other members who just get it. This community that has been developed is simply invaluable.

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Thank you for all that you do

We can't get to visit as often as we like on account of where we live. It's so good to hear about what you're doing for residents and staff.

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A part of the community

Our son has lived here for over a decade, but it’s only since we joined FFES 18 months ago that we’ve really felt part of the community.

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Featured Projects

Fundraising to deliver meaningful experiences

Improving the lives of the people who are supported by the Epilepsy Society, one project at a time.

All Projects
The Tranquillity Nature Trail

The Tranquillity Nature Trail

24th June 2026

A fully accessible trail built by families on a once-unused field, funded by over £30,000 of donations and maintained by volunteers.

View Project
Residents Swimming

Residents Swimming

24th June 2026

We help residents get to hydrotherapy sessions at the Woodrow House pool near Amersham for enjoyable swim sessions.

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Sunday Sounds

Sunday Sounds

24th June 2026

Live music once a month for residents, staff and families with homemade cakes almost as popular as the bands.

View Project
Staff Welfare

Staff Welfare

24th June 2026

A small thank you to the people who care for our loved ones: £6 café vouchers for staff, funded entirely by donations.

View Project

News

The latest news, opinion and events from FFES

All News

Care services restructure explained

24 June 2026

FFES was delighted to hear from head of care services Szymon Kosciukiewicz and head of care development Victoria James-Priday at its June meeting.

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Planning decision delayed again

31 May 2026

We have been informed that the long awaited planning application decision, due by June 1st, has now been delayed for another month. We await the outcome with bated breath.

View Article
Logo of FFES, the families and friends of the epilepsy society in purple and orange gradient circle.

FFES holds AGM

01 May 2026

This has been the third full year of operation for our charity, FFES, which exists to improve the quality of life of people cared for by the Epilepsy Society, and those who support them.

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Support FFES

Help us bring more to their lives

Every pound donated goes to improving the life of the people who live at the Epilepsy Society, and for the staff who support them.

Your support can change lives

  • £12 could pay for two staff vouchers in the Phoenix Cafe
  • £50 could pay for new shrubs for our Nature Trail
  • £750 could pay for an entire Sunday Sounds concert
  • £25 monthly helps us organise future concerts for residents and staff

Giving takes just one minute through JustGiving.

Donate to FFES
People in wheelchairs and caregivers socialise in a decorated hall with musicians performing on stage.