Projects
Navigating the Pandemic
This was a difficult and worrying period for everyone. Keen to help, FFES organised the virtual 2.6 challenge (you could run, jump, bake, it didn’t matter as long as the number 2.6 featured somewhere.)
Families participated in the challenge with such enthusiasm and we raised £7,000. This allowed us to buy iPads to spread amongst the flats which enabled regular virtual contact.
A successful bid for grant from the National Lottery meant we could build an enclosed garden around the campus coffee shop, install games, and create an outdoor space for people to meet when meeting inside was impossible.
The Tranquillity Nature Trail
The Nature Trail is the brainchild of John and Nicola. They wanted to create a space where residents, and the people who support them, could feel at one with nature. Many residents use wheelchairs, so the Trail needed to be fully accessible.
An unused field on campus was identified as a potential location. Once plans had been approved by the Epilepsy Society, we were able to raise over £30,000, and in May 2023 the diggers moved in and created the flower beds and pathways. Then our team of volunteers set about creating a glorious Nature Trail! See how the Trail has matured since 2023!
Since the Trail has been open it has been host to a Grand Opening event. Co-production work between FFES and Epilepsy Society staff brought illuminations for bonfire night; Christmas illuminations during the Christmas fortnight and an animal petting farm. Events are planned throughout the year, and prove to be joyous affairs (weather permitting!)
Sunday Sounds
So many of us find happiness through music. People who have severe epilepsy are no different. In late 2023 two of our members ran the Manchester half marathon, and raised over £13,000. This money is funding a monthly concert series, attended regularly by over 100 people. Home made cakes and refreshments are provided by FFES members, and we’ve invited bands from all over the country to entertain us.
The result? Smiles, happiness, laughter and fun! What we’ve found to be particularly wonderful is that at each concert more and more of our loved ones, supported either by their care staff or family member, are taking part in the sessions, either through dancing, or perhaps shaking a musical instrument.
It’s a very happy vibe!
Swimming
We’re working closely with Epilepsy Society staff to provide a group of residents with access to hydrotherapy at the beautiful Woodrow High House pool near Amersham.
This is a collaborative endeavour between families and staff which brings great joy to all involved. We know that more residents would find hydrotherapy both physically and mentally beneficial, and we very much hope it will be possible to expand significantly hydrotherapy provision at the Epilepsy Society in the mid-term.
Staff Welfare
Our voucher scheme provides staff with £6 to spend as they wish at the Phoenix café. It’s a small way in which we can thank the people who support our loved ones with such dedication. We know from the feedback we receive that it’s a small gesture that goes a long way
Support us
There are many ways you can support us. You can make a donation here. You could choose to raise money for us the next time you participate in a sporting activity like an organised run or cycle ride. If that’s the case we can help you set up a fundraising website through Just Giving.
We’re also delighted when companies choose to support us by nominating us as their charity of the year.
Every penny that is raised for the FFES is directed towards activities that benefit the residents supported by the Epilepsy Society, and the people who provide that care.